Not Giving Up Saves Lives …by Julie
TODAY’S BREW: Are popsicles coffee?
I’m not quite sure how to start this, even though I wrote an outline, because I FEEL it so much. I feel all of the obstacles lying flat beneath my feet, the signs all pointing the way I led everyone to go, and this is what not giving up is about.
Sammy has made so much progress recently it’s unbelievable. Truly unbelievable. A few things have gotten us here: the right diagnosis, the right medication, the right commitment, the right amount of help and the right kind, and a child that lets nothing put him down. All over the past month or so, Sam has gone from NEVER using the potty, to ALWAYS using the potty. He’s learning to separate himself when he feels angry and asking for quiet moments with me reading when he’s ready. He’s speaking really, really smoothly, with zero to minimal jabber, or “word salad.” His attention span is spectacular. This child is a miracle, and he made himself that way.
I hear an awful lot that most mothers would not go this far to support their child. I’ve suffered a lot–but we have suffered a lot. And I cannot let my child suffer. I don’t have the ability. I don’t have the ability to quit some things. Growing, helping, loving, teaching my children is one of them.
Because if I teach my kids that there’s a time to quit, they’ll see nothing but the limits to reach.
If I teach them that their happiness is negotiable, what chance do they have of pushing limits to find it?
If I teach them to stop the harder it gets, I’ve taught them that what they’ve pushed through was unnecessary.
If I teach them to give up, have I taught them anything at all? I’ve only taken from them. Taken their light at the end of their own personal tunnels, taken the depth of their feelings and made light of them, taken their ability to ask “what if” and think of all the other boxes to think outside of and break through. I’ve taken their ability to stop at nothing because I’ve shown them that something can stop me.
We’ve been watching a lot of America’s Got Talent, and I love these people that will stop at nothing, no matter how unconventional their dream. For some people, the dream is just to be happy. But this one made me cry harder than the rest.
I saw this when Sam was just sitting beside me, playing a building game on my tablet, something that would have been too dangerous (yes, dangerous), he wouldn’t have had the ability to sit and do anyway. Pato, because of his OCD, was unable to leave the house, couldn’t ask for help, resorted to begging for money to support himself. To make it where he has is incredible, but all I could think was, my Sammy will never have to experience that because we fought to combat OCD. First.
It’s easy to yell at a child who dictates who goes in what order up the stairs when you’re carrying armfuls of groceries and he’s been making your life hell all day. But seeing what the alternative does to him makes it non-negotiable for me. Imagine that such a trivial thing could throw a child into a wild-eyed sobbing episode for an hour, that he’d remember this moment for days. Imagine facing that every day, having to fight not only himself, his own brain, but to fight for understanding, too. When he can’t understand it himself. Can barely tell us what he wants.
How do you not help that child? How do you not put his needs first?
Because we did this, because I knew what Bipolar Disorder looked like when I brought him to the pediatrician at barely four, because we treated what we could then–OCD and Hyperactivity Disorder–and we were “on watch” for a mood disorder, because we knew what was happening when that mood disorder became real, because we didn’t stop, Sam has every chance of not going through the hell that so many other people have. We got this. That is what not giving up is.
NOW ABOUT ME. ME ME ME ME ME ME.
This summer so far was not about me and my needs, and I knew that going in. I had a strict timeline of what I wanted for Sam, what I needed from professionals, what I needed to see in changes due to behavior therapy and medication, and I needed to see what I could do having him home during such immense changes. July 15th was my deadline for a lot of things. I also was doing editing for clients and trying to have FUN with the kids, because I refuse not to have fun. (We have had so much fun.)
Now is the time for me to focus on my work. What *I* need. So as not to stretch myself too far, I had to suspend working on my own writing because I don’t want to hurt myself (think nervous breakdown, ulcerative colitis, debilitating panic attacks), and I refused to do my best I could do without it being my best.
I made all the right choices.
I have a new list of agents to pitch THE WIND BETWEEN WORLDS TO….a book whose query is now a shining thing of magnificence that begs for reading, and a book that I am now finally able to finish the sequel to! I’m halfway through the sequel, and have a good start on the prequel and had to stop in May to concentrate on other things. My time has come.
Wait, weirdo, you’re writing a sequel and a prequel to a book that isn’t even being published yet?
YES I AM BECAUSE I DON’T STOP AND THIS BOOK WILL NOT GO UNNOTICED.
I don’t write because of what anyone else wants. I write for what I need. And every moment of my life is teaching something to these two amazing kids. They will see that my passion is what drives me and I drive it right back. That I give all I have to get more, and what I want is dependent on nobody but myself. There is no magic number of rejections, no “almosts” in my world. There’s always another way. There’s always more roads to travel. I’ll dig relentlessly making my own if that’s what it takes. And because this is who I am, it is now showing my kids who they are. What they can do and what won’t stop them on their way to it. It’s why Sam remembers little things I say like, “You like what you like. If you like the Alice in Wonderland tea set and you want to offer tea to everyone while doing ninja moves, then hey. You like what you like. Nobody can stop you.”
Be you, everyone. Stop at nothing to be who you want to be. Define your own happiness. Make your own rules–they’re just ideas anyway. Rules about publishing, rules about how young a child can be to show a certain illness, rules about what to say and who to say it to, rules about gender, rules about love, rules that we make for ourselves…. Reshape your world to be what you need. That’s what not giving up is about.